Showing posts with label Oncology Patient Advocate. Show all posts
Showing posts with label Oncology Patient Advocate. Show all posts

Sunday, January 11, 2026

Work, lately...

I don’t usually mix my personal blog and my professional life - and I don’t often write about work here. But as we move into a new year, and as Allan Events Co. continues to grow, it feels like the right moment to connect a few dots.

I’ve been working with many new colleagues in Prince George over the past couple of years, and I’m realizing that not everyone knows why I do the work I do, or where it really comes from. My LinkedIn bio hints at it, and this blog has inadvertently documented the last 11+ years of my life, but this feels like a good place to pause, reflect, and explain things once - clearly.

Where this all started (and continues)

In 2014, my life changed in ways I never expected. A diagnosis of metastatic melanoma (AND then thyroid cancer) reshaped my priorities, my pace, and my understanding of what meaningful work actually looks like.

Those years were hard, frightening, and deeply clarifying. And while I am currently grateful to be living with no evidence of disease, I remain “on surveillance” at BC Cancer, with annual CT scans, regular follow-ups, and the quiet knowledge that cancer is not something I can ever fully put behind me. It is part of my life, and it continues to inform how I move through the world and my work.

Living with serious illness has a way of stripping things down to what matters most. For me, that meant focusing my energy on work that feels purposeful, connected to people, and genuinely useful - work I can feel proud of at the end of the day.

That clarity eventually became Allan Events Co.

My professional path before and alongside this chapter has included roles in sales, technology, finance, and leadership with organizations such as OpenText, BlackBerry, Scotiabank, Loblaw, and Community Futures. Since my diagnosis, I have also been deeply involved in oncology patient advocacy, leading national education and awareness initiatives with Save Your Skin Foundation and Ocumel Canada. Strategy, communication, education, and compassion have become inseparable for me, both personally and professionally

This work is also personal in another way. Mike and I met through patient advocacy, connected by a shared experience with metastatic melanoma and life-saving immunotherapy clinical trials. It’s an unusual thing to have in common, but it shapes how we move through the world and the work we choose to take on. We know - very clearly - that every day matters.

What we do at Allan Events Co.

Allan Events Co. focuses on business events and medical education, delivered with care, precision, and a deep respect for the people involved.

We coordinate events in all formats - conferences, trade shows, training sessions, roundtables, CME-accredited symposiums, and community gatherings. Much of our work happens behind the scenes: venue sourcing, budgeting, timelines, sponsorship, catering and A/V coordination, speaker and exhibitor management, and all the small details that make an event run smoothly.

Our role is to bring all the moving pieces together, keep everything on track, anticipate challenges, and create space for our clients to focus on what matters most to them. We aim to deliver events that feel thoughtful, seamless, and impactful. And we genuinely have fun in the process!

Recent work & gratitude

Over the past year, we’ve had the privilege of supporting several projects in Prince George and beyond, including work with the Prince George Chamber of Commerce on initiatives such as the Business Excellence Awards and Voices for Change Safe Streets Rally. These events take many hands, minds, and partners to bring to life, and we love collaborating with venues, suppliers, technicians, and community organizations to transform spaces into exactly what our clients need.

One of the most meaningful projects of late 2025 was supporting Spirit of the North Healthcare Foundation on their 32nd annual Festival of Trees at the CN Centre. Spirit of the North is a driving force in advancing healthcare across northern British Columbia - funding equipment, innovation, and care that directly impacts patients and families in our region. As someone who continues to live with the long-term realities of cancer, being invited to support Festival of Trees was both an honour and a deeply personal full-circle moment.

Looking ahead

As we move into 2026, I’m looking forward to continuing work that sits at the intersection of community, education, and patient advocacy.

Alongside ongoing projects through Allan Events Co., I’ll be spending time this year supporting national oncology education and awareness initiatives - including continued collaboration with Save Your Skin Foundation, consulting work in the cancer education space, and participating in conversations that help bring patient perspectives into broader healthcare discussions. There are also a few upcoming speaking, writing, media, and podcast projects in the works that I’m excited to share when the time is right.

These efforts are deeply connected to the local work I do in Prince George. Whether coordinating events, supporting healthcare foundations, or contributing to national education initiatives, the goal is the same: to create spaces - in person and online - where learning, connection, and advocacy can meaningfully happen.

If you’re here because you know me personally, professionally, or somewhere in between - thank you. This post exists to offer a bit of context, so there’s a shared understanding as I continue focusing on the work that matters.

 

(...and if you want to know more, feel free to peruse the blog tags in the right sidebar, see some highlight photos below, or view my portfolio, here


Lymphedema Education Day - Nov-2024
Accredited Medical Education Conference




Prince George Chamber of Commerce 2025 Business Excellence Awards

 
...including time spent with The Honourable Jody Wilson-Raybould


So very grateful for all of the wonderful people, businesses, organizations, and concepts that we get to work with! 


And lots more to look forward to 😊


  

Tuesday, March 5, 2024

March is Lymphedema Awareness Month

Over the years I have written quite a bit about my experience with lymphedema - secondary lymphedema in my right thigh, from surgery for melanoma skin cancer. Lymphedema (lim-fa-DEE-ma): lymphedema is a lifelong condition caused by a buildup of lymph fluid. This happens when the lymphatic system is either faulty or damaged and cannot function as normal. It leads to chronic swelling in the tissues where the lymph flow is blocked.*  I've dabbled in pursuing treatment for this but will admit I have not yet established ongoing management of it. Still on my to-do list. Mike also has lymphedema, from the same surgical procedure for melanoma, but it settled more in his foot. 

In any case, having bolstered a bunch of melanoma-related patient support and education initiatives with Save Your Skin Foundation and on my own over the years, I am now adding a lane, and lending a hand with lymphedema patient support. Recently I have joined a team in Prince George who are planning a Lymphedema Education Conference later this year for Physicians and allied HCPs in the Northern Health region of BC. I am happy to be working with an esteemed local Physiotherapist who is leading the initiative; I will support with my event planning and tech experience. 

Not only am I learning more about lymphedema, and the needs of patients, but through this project I am learning more about the health care system in our region, and the access to resources that Physicians may or may not have. 

Our group is excited to be planning this informative event, which will consist of a full day for Physicians, including a lymphedema care doctor guest speaker from Ontario, and then a half-day for allied health care providers on lymphedema care and bandaging, etc. While planning all of this we are learning about the process of hosting - and funding - an accredited conference for Physicians. It's a big undertaking! But a necessary one, as continuing lymphedema education fights for attention just as many other medical infirmities have to. 

View this video from Shirley Bond, MLA, Prince George-Valemount speaking about World Lymphedema Day and the local work and recent initiatives underway in our area:



I'll update with more information when I can, but in the meantime, I'll end with a shout-out to the 1 million Canadians impacted by lymphedema and bid them a healthy Lymphedema Awareness Day


For more information, please check out the Canadian Lymphedema Framework, and/or the lymphedema association in your province:

Canadian Lymphedema Framework


Friday, January 12, 2024

A Year to Review

As I prepare to spend the next year writing a book and pursuing a career as a freelancer and advocate in the oncology space, I have been reviewing the multitude of resources collected in my cancer travels over the last nine-plus years. I am inspired to share the knowledge I have gained through my work, but also to re-visit it with the additional perspective I have developed since first being diagnosed with advanced cancer. 


Some resources I'll mention in the coming months you will have heard me touch on before, some might be familiar only to those who follow Save Your Skin Foundation (where I wrote about them but didn't share on my personal blog), and others will be completely new to all of us. I will be expanding on my experiences with these items, and in some cases, I expect my extended thoughts on the topic will reveal some new context. 

January is as great a time as any to kick off a new plan - I'll start with a plug for those who enjoy setting new years resolutions. An easy one for the year is to perform a monthly skin self-exam to stay on top of any changing skin spots, moles, or conditions. Our skin is our body's largest organ, and we need to check it to protect it. Set a reminder in your calendar, google, or Alexa, and/or align your skin check with the full moon every month - easy peasy!  (Just saying... if I hadn't neglected my weird mole all those years ago, I wouldn't now be sitting here talking about metastatic cancer.)


Also in January, it is Children Impacted by a Parent’s Cancer Month (CIBAPC), in the United States.

I have set a plan for my blogging to align with a calendar of cancer awareness days for 2024. As you know, through my work I have inadvertently become an "unofficial expert" on melanoma and non-melanoma skin cancers, as well as ocular (or uveal) melanoma. Also having had a simultaneous diagnosis of thyroid cancer, and becoming extensively familiar with the treatments for all of these, as well as related conditions and topics such as lymphedema, gene testing, and treatment side effects, I will share news and insights on each of the ones I feel equipped to speak about.

You may have already noticed I added an image with a link in my blog sidebar to the right showing the I Had Cancer calendar for 2024. This calendar is the most comprehensive of its kind, that I've seen. I Had Cancer is an online patient support community I have been a part of for many years, wrote a blog for them once upon a time too. I'm inspired to share their excellent resources and to be able to do so on a wider array of cancer indications and related topics. 

My journey with melanoma skin cancer has many similarities to that of folks with other cancers, so I will speak to that throughout the year. 

Also, I realize that you know people other than myself who have cancer - it isn't all about me.... so you may find some interesting information and additional cancer resources such as awareness months/days and ribbon colours, and support resources for a wider community.


This calendar is free to download so if you'd like a copy you can click here to get it. I'll keep it in the sidebar this year and refer to it in upcoming posts, but also please feel free to get it and share with your family and friends. 

Why do I feel cancer or health-related awareness activities are important? For the same reason I still write about my journey almost ten years after it began: to be part of a community of support. When I was first diagnosed, I felt very isolated, filled with fear, and like no one understood what I was going through. When I started to research melanoma and found people who had survived it, I felt hopeful. They helped me, and now I can help others.

Everyone everywhere who is diagnosed with any life-changing disease or condition goes through a unique and often terrible range of emotions as they learn about their condition, their "new normal" - or wonder if there will ever be anything "normal" again. Cancer, diabetes, MS, heart disease, lung disease, Crohn's, lupus, hepatitis - too many to list. We all have something. And, pack animals that we are, we often find comfort in engaging with others who are in the same community. It is part of coping, learning, sharing, and giving back.  


Another great resource for patients and caregivers includes the National Comprehensive Cancer Network® (NCCN®) Guidelines on melanoma and non-melanoma skin cancers, and many other indications, as well as supportive topics such as immunotherapy or treatment side effects, mental wellness, and survivorship.

I wish I had had NCCN® guides for melanoma and thyroid cancers back in 2014-2015, though these have been newly developed in recent years. Through my work at SYSF I got to research and endorse many of these guides, and provide patient quotes from our community, and somehow my little face is even on the cover of the 2021 melanoma guide. That is how much I love these guides and recommend them to patients and caregivers. 

(Clicking this image will take you to the most current 
Melanoma Patient Guide from NCCN, updated in 2023)

Though these guidelines are developed with best practices in use in the United States, the resources do apply to patients and clinicians in Canada (where treatment options and access apply), as I have personally confirmed with members of the SYSF Medical Advisory Board. Canadian doctors do refer to the NCCN® clinical guidelines, and they do support the distribution of NCCN® patient guidelines to Canadian patients.

Plus - the other day when I was researching NCCN® updates I found they have published a new guide on thyroid cancer in late 2022! This is exciting, as I have never really understood the details of my thyroid cancer diagnosis. I knew I had papillary thyroid cancer, and that they were happy the tumour wasn't melanoma, so I had a complete thyroidectomy and radioactive iodine treatment. That's kind of it. Until now - I just finished reading this and I'm clearer now on more of my details. Check it out: Thyroid Cancer

Also please feel free to see other NCCN® guides related to this community, including the Survivorship books, which contain quotes from yours truly: 


NCCN Guidelines for Patients®: Melanoma

NCCN Guidelines for Patients®: Squamous Cell Skin Cancer

NCCN Guidelines for Patients®: Basal Cell Skin Cancer

NCCN Guidelines for Patients®: Immunotherapy Side Effects series:  
Immunotherapy Side Effects: CAR T-Cell Therapy and Immunotherapy Side Effects: Immune Checkpoint Inhibitors

NCCN Guidelines for Patients®: Survivorship Care for Healthy Living and Survivorship Care for Cancer-Related Late and Long-Term Effects 

NCCN Guidelines for Patients®: Distress During Cancer Care

NCCN Guidelines for Patients®: Adolescents and Young Adults with Cancer

The Patient books are easy to read, well-illustrated, and are all available for free to view and print at NCCN.org/patients or via the NCCN® Patient Guides for Cancer App: Virtual Library of NCCN Guidelines® App – Available for iPhone/iPad and Android Smartphone/Tablet.  Keep an eye out for new guides all the time, they are ever-expanding. 


So there, that is my plan for the year - laid out in January - how organized! I'm also set for a couple of my own appointments in the coming months, including my annual CT scan in March. I'm also happy to be co-supporting, with a lovely group of inspired volunteers, an accredited 'Lymphedema Education Day' to take place later this year for Physicians and allied health care professionals in the Northern Health region. Stay tuned!



Sunday, January 29, 2023

Innovation is a Journey

Quick post to share a campaign that just launched: Innovation is a journey

I am honoured to have been part of this project and to support the work being done by life-saving pharmaceutical companies in the cancer space. Their research and development in innovative medicines is invaluable. 

Thank you BMS - you saved my life!



There is also an accompanying article for which I was interviewed, please feel free to check it out, here

“Even if something only works temporarily, that option could buy time until another treatment — and potentially a cure — comes along.” 

Wise words Mike, thank you. We live by this. 


Monday, November 28, 2022

Once a Nosy Patient, Always a Nosy Patient (Advocate)

Note from a reader: Enough gallivanting around Natalie, get back to work!  

OK, back to work I go - I have cancer to write about, experience to share, fellow patients and warriors to help through their crappy time the way others helped me through mine (and still do). 

Earlier this year I wrote about my most recent surgery (not cancer-related), and the results of that - not anemic anymore - good stuff! But there is more... I have learned a lot in the past couple of years about my health and options. Thanks to a move in provinces, I basically qualified for a whole new round of Physician referrals and perspectives, which is pretty interesting to experience. I was very happy with my care before, but now I have some new tools to add to my repertoire.

First off, I am fortunate to have another great family doctor (GP), who has been fantastic acting as my advocate and connecting me with specialists I may not have discovered otherwise. 

Right out of the gate he got me referred to the BC Cancer Agency (the equivalent of the formerly named Cancer Care Ontario, which governs all cancer care in the province - in the western provinces and some of the east, they actually refer to it as "Cancer Agency," which I had learned in my work with SYSF, but hadn't encountered personally, in Ontario). Every province has its own health care budget so if you move you get a new health card and you fall into that province's budget, and you no longer get services in the other province. There are times when patients can qualify for out-of-province treatment/care, but I'll save that topic for another day.

BC Cancer (BCCA) has a beautiful Cancer Centre here in Prince George, and a couple of CT scanners in the adjacent hospital UHNBC, as well as MRI (though for PET we have to go to Vancouver). My first experience with the centre here was interesting, as, being new to BC Cancer, I was to follow the "new patient intake" pathway. My intake interview was conducted by a nurse over the phone (thanks covid), and I was struck by the complete line of questioning as it was almost exactly what I had experienced seven years prior, when I was first diagnosed with melanoma. 

It was rather surreal, and to the surprise of the nurse, so many of my answers were detailed and knowledgeable. In 2014, being brand new on the scene I had stumbled with many of the questions, not understanding what the staff were saying to me, not knowing my family/cancer history, being in shock in general as a brand new cancer patient. They were very sensitive and gentle with the questioning, but to be asked again this far down the line if I had a Will in place and a Personal Care representative and my affairs in order was a stark reminder of the deadly disease I am dealing with.

This time around I heard the questions and knew what to say and what to expect, from my years of personal research as well as work in the space, but I couldn't help being taken back to my first cancer centre experience, sitting in the waiting room holding that tell-tale newly-diagnosed envelope. It was emotionally difficult to answer some of the interview, as I had entered the process knowing I was new to this centre, but not comprehending that they wouldn't just read my file, they would treat me as an entirely new patient. 

Overall it was interesting to have that experience and it reminded me of the compassion all newly diagnosed patients require.

Image source: All.Can Canada

Intake complete, I was referred to the Medical Oncologist who travels here to cover melanoma patient care, among other indications. My first impression - aside from knowing no one could compare to The Boss - was that I would have to advocate for myself right out of the gate. Because I was past five years with no evidence of disease since melanoma diagnosis, in this Oncologist's opinion, I no longer needed to be followed. Well I know otherwise! 

A metastatic melanoma diagnosis is forever. It is a sneaky disease too, in which one might not experience symptoms of recurrence for months, and if not for being followed, one would not find out they have recurred until it is potentially too late to treat. 

A patient has the right to choose their follow schedule based on guidance from their medical team, but also on how they are feeling and doing, and any symptoms they may or may not be experiencing. I am clearly aware that I can request a CT scan any time I wish. I want one annually even in good health, so annually one I will get.

Simultaneously I received a referral to a Dermatologist for a full skin exam, which I should also have every year, but hadn't in I won't say how long. That one I'm not as hot to pursue, as I was educated from my first Derm years ago, my metastatic melanoma would not cause new moles or lesions. I may get new ones, but they would be unrelated to the first. While of course I do my monthly skin self-exams, it's the internal melanoma spread to lymph nodes and beyond I need the cancer centre's help watching out for. 

There are not official guidelines in place across Canada for metastatic melanoma and non-melanoma skin cancers at this time. There are some guidelines in a few provinces, but not a complete set, so this explains why patients in some centres will receive completely different information about their disease than patients in other areas. 

It is a disparity that continues, and that should be addressed so that patients will no longer fall through cracks in the system, as I could for example, if I wasn't being scanned. Or as melanoma friends I have met on many occasion could, when they receive outdated treatment information or options. It is discouraging that we still see many of the same things happening in skin cancer care now as Mike experienced when he was first (mis-)diagnosed in 2007. But I digress...

Got a clear bill of skin health from the visiting Dermatologist, and that's great. Since then though, I'm happy to report that PG has gotten two new Dermatologists here full time, so that will help to address the Derm shortage for everyone in the Northern Health region of BC. I go see my new Derm for the first time in January so stay tuned for updates on that. You can be sure I'll be doing my usual dig-for-info-as-informed-patient at that one!

Alongside all this melanoma-maintenance, my GP referred me to an Endocrinologist. You may know from my thyroid cancer battle that I had dabbled in Endocrinology lessons in 2015-2016 at the same time as melanoma, and that involved neck surgery and radioactive iodine treatment. Completely different experience from skin cancer, but again a whole bunch of information a patient needs to know.

My new Endocrinologist here in PG was extremely compassionate and thorough, and once more it was like I was a new patient all over again. He requested all of my surgery and pathology reports from Sunnybrook, and explained things to me in a way I had not heard before. We did bloodwork several times to get full stats on my TSH/T3/T4/Thyroxine/Thyroglobulin, and he ordered an ultrasound on my neck/throat to get a baseline in case we needed it for future. 

It hadn't occurred to me to get an ultrasound sooner, as since my thyroidectomy and follow-ups in Toronto I was on a maintenance-dose of daily thyroid hormone supplement to keep my system running and keep any potential thyroid cancer cells away. Plus with the head to toe CT scans for melanoma I figured I was covered for metastasis-checks. 

Turns out an ultrasound every few years is a good idea as well, to check for any lumps or bumps that may not show up on a CT scan. In any case, ultrasound was clear, bloodwork was good, he adjusted my dose gradually down a little bit, and I'm rolling with that for the foreseeable future, consistent bloodwork pending.

So that's my informal cancer lesson for the day, work done - check and check! Though I do continue to look for ways to help myself and others in this disease space, so consider this an open invitation: if you have any questions you need help answering, about cancer, but especially skin cancer or thyroid cancer, I may be able to steer you toward the right source of information. I hang out with lots of health care providers and patient advocates alike and am always open to helping someone get the support they need. With gratitude, chat again soon. 💝